05/14/2026
May 16th is World CDG Awareness Day, a cause that is incredibly close to our hearts.
This Saturday, May 16th, we’ll be “working for Davie” in honor of our granddaughter and all families affected by CDG.
From 8 AM–12 PM, coffee drinks will be on us, and in lieu of paying for your coffee, we invite you to consider making a donation to CDG CARE.
Congenital Disorders of Glycosylation (CDG) are a group of more than 190 rare genetic conditions, many of which currently have no approved treatments. Every donation helps support awareness, advocacy, family support, and research for those living with CDG.
Thank you for helping us spread awareness and love within our community 🤍
With love and gratitude,
Karen and Barrett Byrne