07/07/2026
Henry has had an overwhelming week.
Last Monday started off dramatic and ended with reintubating for a larger tube. He recovered well and was great through Tuesday and Wednesday.
On Thursday, his CO2 was climbing and he was becoming acidotic. He maxed out the settings on his conventional ventilator so they attempted to switch him to a more gentle ventilator (oscillator) that would help blow off more CO2. He didn’t tolerate the switch and he was stuck on the conventional ventilator with more damaging pressures. He was extremely unstable and crashed multiple times, requiring bagging with manual breaths.
Friday started off okay, but again his CO2 started climbing and the decision was made to reattempt the oscillator. We were informed that if he didn’t tolerate the oscillator or start improving, he was pretty much out of options.
Fortunately, he tolerated the oscillator beautifully (with lots and lots of morphine) and his CO2 and ph corrected. He was given ibuprofen to treat his heart murmur that had started reopening.
On Saturday, the new issue was a high blood pressure and kidney injury. Apparently high blood pressure is never seen in preemies so he had all specialists on deck. It was resolved with some medications and the decision was made to switch from ibuprofen to Tylenol to continue closing the PDA murmur without causing anymore damage to his kidneys.
Right now he’s doing much better. He’s still considered critical, but we’re calling him “critically stable”. He’s on very high settings on the ventilator but we’ve been able to start weaning some of them, so we have a tiny bit of wiggle room if he does start to go downhill again. At this point, his heart murmur needs to be closed in order for him to improve. It’ll be rechecked on Friday. Since he’s not stable enough to be transported, he’ll be scheduled for a corrective surgery if the PDA hasn’t closed by then.
As for his lungs, his atelectasis (collapsing) has improved. The chronic lung disease (BPD) and edema is worsening which is why the PDA needs to be closed. But his nurse says that as they grow, undamaged lung tissue and alveoli will grow and improve his lung function.
He’s still so fragile and things are always changing so fast, but we’re so grateful he’s still here after the week he’s had. His team is amazing and he’s truly in the best hands. Please continue thinking about us and praying for Henry’s progress ❤️
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