01/05/2025
Darley Primary School!
Get behind Noah in support of The Bloody Long Walk!
From Noah’s page today:
The last 12 months have been the hardest we have ever had to go through with Noah with his mito.
Mitochondrial Disease
Mito can sound so cute can't it...it isn't.
The unrelenting waves of metabolic strokes came one after another until Noah was unable to move, talk, see or hear properly. He became a shell of himself and we did our best to keep his smiling on the inside.
We are so grateful that over the last few months we are seeing parts of who he was return and we are adjusting to a "new normal" and celebrating who is he now.
Look at that smile! And his personality is shining through, he is Noah again.
When he was experiencing all that, the support, ideas, new protocols, some new treatment ideas and brilliant minds of scientists and doctors coming together to create new care plans came from the Mito Foundation.
I know you see us do Bloody Long Walk each year and you must think...well is is helping? I can tell you YES it absolutely is. Not just for Noah but for many others with Mitochondrial Disease and there is more to come.
So we are going to talk again...soon...in fact just a couple of days after Noah's 15th Birthday on the 18th May we will walk 35km to support people like Noah with mito.
Today though...if you donate $10 a great company called Compeed will match it. So your $10 will be $20!! $50 would become $100! Love that 🙂
ALL online donations received today will be MATCHED (up to $18,000) for TODAY ONLY! 😲
https://event.bloodylongwalk.com.au/fundraisers/katbarlow/melbourne
If you have ever wanted to donate and didn't feel like you could (we get it...cost of living is bonkers) today might be the perfect day. If you can't would you please share this post? That would be amazing too.
THANK YOU for all the ways you support us always xx
The last 12 months have been the hardest we have ever had to go through with Noah with his mito.
Mitochondrial Disease
Mito can sound so cute can't it...it isn't.
The unrelenting waves of metabolic strokes came one after another until Noah was unable to move, talk, see or hear properly. He became a shell of himself and we did our best to keep his smiling on the inside.
We are so grateful that over the last few months we are seeing parts of who he was return and we are adjusting to a "new normal" and celebrating who is he now.
Look at that smile! And his personality is shining through, he is Noah again.
When he was experiencing all that, the support, ideas, new protocols, some new treatment ideas and brilliant minds of scientists and doctors coming together to create new care plans came from the Mito Foundation.
I know you see us do Bloody Long Walk each year and you must think...well is is helping? I can tell you YES it absolutely is. Not just for Noah but for many others with Mitochondrial Disease and there is more to come.
So we are going to talk again...soon...in fact just a couple of days after Noah's 15th Birthday on the 18th May we will walk 35km to support people like Noah with mito.
Today though...if you donate $10 a great company called Compeed will match it. So your $10 will be $20!! $50 would become $100! Love that :-)
ALL online donations received today will be MATCHED (up to $18,000) for TODAY ONLY! 😲
https://event.bloodylongwalk.com.au/fundraisers/katbarlow/melbourne
If you have ever wanted to donate and didn't feel like you could (we get it...cost of living is bonkers) today might be the perfect day. If you can't would you please share this post? That would be amazing too.
THANK YOU for all the ways you support us always xx
