11/19/2022
Unfortunately I have not good news. My spinal headache das not go way.
**Back in May local spine clinic SportsMed did steroid shot and puncture my dura, resulting spinal CSF leak and my disability..
I had no glue what is Dura puncture mean, and where it could lead. May and June I was in different reality, thinking I'm dying, with uncontrollable head pain, my left sign was numb, low back, between shoulders pain, stiffed neck, full ears, noise in head. Feeling like you under water and same time in airplane.
2 blood patches, 2 emergency.
Both clinics, one who did steroid shot, and another Tennessee Valey Pain Clinic, dump me with no help, no recommendation, or gave wrong recommendation, and try to mislead me with diagnose, refused to do MRI or other tests, ( but they run drug test) including my primary provider Twilight clinic, another refused to give referral to specializing clinic, like Duke even I have neurologist recommendation, what increased my waiting time. It's only 5 in USA. who is specializing in CSF leak. Long story shot. I still bedridden most time. Got really bad mid August, mid September I said good buy to my closest one. Few days ago I "died" again. Later I found out during this time Twilight clinic in Athens wrote on my records ' worried well patient.. '...really?
Double vision, blurry vision, losing voice, light sensitivity, tinnitus. Headache came as soon as I stood, most time disappeared straight away or within 10/30 mins on laying down. Other symptoms along the way are sweating along hairline on my neck, pain in sternum.
*I'm not one who complain. I went to my church few days ago, spoke with priest, he asked why I not tell nobody, I need to talk.
And tell what is going on.
So I do. If someone has headache and weakness not diagnosed yet, check for CSF leak. do not depend On MRIs result, as most time they will not show leak, or not properly trained ppl will not find it. It is 3 facebook groups, you can join and find recommendations and answers.
Back to business. Our lease is ending on Bridge st, and we will not renew it. Until I get better no way to say what happens.
I don't say goodbye forever.
Thank you all who support! Take care of your self and your closest one!
Few days Before dura puncture and now.