09/16/2026
Little Legacies, Big Impact: Ezra's Story
Ezra John Eldon Rosenbeck was just three years old when he passed away on August 7, 2026, after living with GM1 gangliosidosis, an incredibly rare and devastating disease. GM1 slowly took away his ability to sit, hold his head up, and move freely, but it could never take away his joyful spirit. Ezra loved music, being sung to, swinging in the wind, swimming, bath time, and most of all, his family. His life was short, but his impact was anything but small.
In honor of Ezra, his family has chosen to launch a $10,000 Little Legacy, Big Impact campaign to help bring Everett’s Place Play Café to life, a nonprofit being created to provide a safe, exceptionally clean, inclusive place for medically complex, disabled, and special needs children and their families to play, connect, and feel understood.
As part of Little Legacies, Big Impact, Everett’s Place will create a permanent Memorial Wall honoring children whose lives were far too short because of rare disease, illness, disability, special needs, and other medical challenges. A place where their names can continue to be seen, remembered, and celebrated.
For Ezra’s family, this campaign is a way to honor his life while helping create something they believe can make a lasting difference for other families like theirs. They believe having a facility like Everett’s Place Play Café will be invaluable to our community of caregivers, providing more than support, but a place to connect, belong, and feel understood by people who truly understand their journey.
If you followed Ezra’s story, loved him from afar, or simply believe his life deserves to be remembered, we invite you to help build his Little Legacy. Every donation helps us move one step closer to creating this special space and permanent memorial.
And if you have lost a child or loved one and would like to create a Little Legacy, Big Impact campaign in their memory, we would be honored to walk alongside you. Your campaign can be as big or as small as feels right for your family, or you can choose a private donation in honor of your loved one. However you choose to participate, their name and memory can become part of something lasting.
Reach out to us to learn more about creating their Little Legacy... Because every child deserves to be remembered. Every life leaves a legacy.🦓
Honoring Ezra’s Life Through a Legacy That Will Live On